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S 1862 · in committee · significant

ORPHAN Cures Act

What this bill does

  • This bill changes Medicare's drug price negotiation rules to exclude orphan drugs used for rare diseases.
  • It affects Medicare beneficiaries and pharmaceutical companies that develop drugs for rare conditions.
  • The change delays when orphan drugs become subject to price negotiation by not counting their orphan drug period.

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Community Threads

Started by Cosponsor

  1. 01

    How would excluding orphan drugs from Medicare price negotiation affect costs for elderly patients with rare diseases compared to other Medicare beneficiaries?

  2. 02

    What evidence exists that delaying price negotiation on orphan drugs encourages pharmaceutical investment in treatments for rare conditions?

  3. 03

    Which pharmaceutical companies would benefit most from this exemption, and how might it change their pricing strategies for rare disease treatments?

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Sponsor · R-WY

John Barrasso

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Introduced 2025-05-22

Joining the bill

Legislative timeline

  1. 2025-05-22 · senate · IntroReferral

    Read twice and referred to the Committee on Finance. (text: CR S3119)

  2. 2025-05-22 · IntroReferral

    Introduced in Senate

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