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HRES 253 · in committee · symbolic

Expressing support for the designation of May 15, 2025, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.

What this bill does

  • This resolution designates May 15, 2025, as Prader-Willi Syndrome Awareness Day.
  • The designation affects patients, families, and researchers working on this rare genetic disorder.
  • The resolution has no direct cost and serves to promote awareness and research funding efforts.

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Community Threads

Started by Cosponsor

  1. 01

    How might a national awareness day for Prader-Willi Syndrome influence federal research funding or private donations for this rare genetic disorder?

  2. 02

    What specific outcomes would indicate that this awareness designation successfully reached patients, families, and the medical community?

  3. 03

    Are there existing awareness days for other rare genetic disorders, and what measurable impact have they had on research or patient support?

Cosponsor writes these to seed civic discussion — they aren't user posts. Sign in to reply.

Sponsor · D-NY-20

Paul Tonko

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Introduced 2025-03-25

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Legislative timeline

  1. 2025-03-25 · house · IntroReferral

    Referred to the House Committee on Energy and Commerce.

  2. 2025-03-25 · IntroReferral

    Submitted in House

  3. 2025-03-25 · IntroReferral

    Submitted in House

Congress.gov ↗

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