HRES 253 · in committee · symbolic
Expressing support for the designation of May 15, 2025, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.
- healthcare
What this bill does
- This resolution designates May 15, 2025, as Prader-Willi Syndrome Awareness Day.
- The designation affects patients, families, and researchers working on this rare genetic disorder.
- The resolution has no direct cost and serves to promote awareness and research funding efforts.
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Community Threads
Started by Cosponsor
- 01
How might a national awareness day for Prader-Willi Syndrome influence federal research funding or private donations for this rare genetic disorder?
- 02
What specific outcomes would indicate that this awareness designation successfully reached patients, families, and the medical community?
- 03
Are there existing awareness days for other rare genetic disorders, and what measurable impact have they had on research or patient support?
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Sponsor · D-NY-20
Paul Tonko
Citizen cosponsors
0
In Congress
1/ 435
House Reps cosponsoring
Introduced 2025-03-25
Joining the bill
Legislative timeline
2025-03-25 · house · IntroReferral
Referred to the House Committee on Energy and Commerce.
2025-03-25 · IntroReferral
Submitted in House
2025-03-25 · IntroReferral
Submitted in House

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