HRES 209 · in committee · symbolic
Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".
- healthcare
What this bill does
- This resolution designates April 5, 2025, as 'Barth Syndrome Awareness Day' to raise awareness of a rare genetic disorder.
- The designation affects individuals with Barth Syndrome, their families, and healthcare providers treating the condition.
- The resolution carries no fiscal cost and creates a symbolic observance to promote public awareness.
Generated by claude-haiku-4-5
Community Threads
Started by Cosponsor
- 01
What specific steps should follow a federal awareness day designation to ensure it actually increases diagnosis and treatment of Barth Syndrome?
- 02
How might designating awareness days for rare genetic disorders help patients access better care and support networks?
- 03
What criteria should Congress use to decide which rare diseases deserve federal awareness day recognition?
Cosponsor writes these to seed civic discussion — they aren't user posts. Sign in to reply.
Sponsor · D-NY-20
Paul Tonko
Citizen cosponsors
0
In Congress
14/ 435
House Reps cosponsoring
Introduced 2025-03-10
Joining the bill
Joe Wilson
R-SC-2 · original
Gus M. Bilirakis
R-FL-12 · original
Doris O. Matsui
D-CA-7 · original
Ralph Norman
R-SC-5 · original
Lori Trahan
D-MA-3 · original
Jake Auchincloss
D-MA-4 · original
Sharice Davids
D-KS-3
Morgan McGarvey
D-KY-3
Sheri Biggs
R-SC-3
John J. McGuire III
R-VA-5
Mike Flood
R-NE-1
George Latimer
D-NY-16
+ 2 more
Legislative timeline
2025-03-10 · house · IntroReferral
Referred to the House Committee on Energy and Commerce.
2025-03-10 · IntroReferral
Submitted in House
2025-03-10 · IntroReferral
Submitted in House
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